Engaging consumers with musculoskeletal conditions in health research: A user-centred perspective

Patrick Cheong Iao Pang, Ornella Clavisi, Shanton Chang

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

3 Citations (Scopus)

Abstract

Consumers are frequently involved in different kinds of health research, such as clinical trials, focus groups, and surveys. As pointed out by different studies, recruiting and involving consumers to participate in academic research can be challenging. While different research and guidelines are provided to instruct researchers to recruit participants ethically, they seldom consider the needs and expectations of consumers. In this research, we interviewed 23 consumers with musculoskeletal conditions in Australia, to understand their needs and motivations for participating in research from a user-centred perspective. Based on these data, we systematically summarise consumers' feedback into four main themes: (1) Research as Learning Opportunity; (2) The Important Role of Communities and Health Professionals; (3) Research Transparency and Updates; and (4) Special Needs for People with MSK Conditions. As a result, a few recommendations are proposed and researchers should further consider these when designing consumerbased studies. Ultimately, with a better understanding of consumers, we hope that our research can enhance consumer engagement and improve their participation in health research.

Original languageEnglish
Title of host publicationIntegrating and Connecting Care - Selected Papers from the 25th Australian National Health Informatics Conference, HIC 2017
EditorsLouise K. Schaper, Sue Whetton, Angela Ryan
PublisherIOS Press
Pages104-111
Number of pages8
ISBN (Electronic)9781614997825
DOIs
Publication statusPublished - 2017
Externally publishedYes
Event25th Australian National Health Informatics Conference, HIC 2017 - Brisbane, Australia
Duration: 6 Aug 20179 Aug 2017

Publication series

NameStudies in Health Technology and Informatics
Volume239
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference25th Australian National Health Informatics Conference, HIC 2017
Country/TerritoryAustralia
CityBrisbane
Period6/08/179/08/17

Keywords

  • Consumer participation
  • Engagement
  • Musculoskeletal conditions
  • Recruitment
  • User-centred research

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