TY - GEN
T1 - Engaging consumers with musculoskeletal conditions in health research
T2 - 25th Australian National Health Informatics Conference, HIC 2017
AU - Pang, Patrick Cheong Iao
AU - Clavisi, Ornella
AU - Chang, Shanton
N1 - Publisher Copyright:
© 2017 The authors and IOS Press.
PY - 2017
Y1 - 2017
N2 - Consumers are frequently involved in different kinds of health research, such as clinical trials, focus groups, and surveys. As pointed out by different studies, recruiting and involving consumers to participate in academic research can be challenging. While different research and guidelines are provided to instruct researchers to recruit participants ethically, they seldom consider the needs and expectations of consumers. In this research, we interviewed 23 consumers with musculoskeletal conditions in Australia, to understand their needs and motivations for participating in research from a user-centred perspective. Based on these data, we systematically summarise consumers' feedback into four main themes: (1) Research as Learning Opportunity; (2) The Important Role of Communities and Health Professionals; (3) Research Transparency and Updates; and (4) Special Needs for People with MSK Conditions. As a result, a few recommendations are proposed and researchers should further consider these when designing consumerbased studies. Ultimately, with a better understanding of consumers, we hope that our research can enhance consumer engagement and improve their participation in health research.
AB - Consumers are frequently involved in different kinds of health research, such as clinical trials, focus groups, and surveys. As pointed out by different studies, recruiting and involving consumers to participate in academic research can be challenging. While different research and guidelines are provided to instruct researchers to recruit participants ethically, they seldom consider the needs and expectations of consumers. In this research, we interviewed 23 consumers with musculoskeletal conditions in Australia, to understand their needs and motivations for participating in research from a user-centred perspective. Based on these data, we systematically summarise consumers' feedback into four main themes: (1) Research as Learning Opportunity; (2) The Important Role of Communities and Health Professionals; (3) Research Transparency and Updates; and (4) Special Needs for People with MSK Conditions. As a result, a few recommendations are proposed and researchers should further consider these when designing consumerbased studies. Ultimately, with a better understanding of consumers, we hope that our research can enhance consumer engagement and improve their participation in health research.
KW - Consumer participation
KW - Engagement
KW - Musculoskeletal conditions
KW - Recruitment
KW - User-centred research
UR - http://www.scopus.com/inward/record.url?scp=85026889816&partnerID=8YFLogxK
U2 - 10.3233/978-1-61499-783-2-104
DO - 10.3233/978-1-61499-783-2-104
M3 - Conference contribution
C2 - 28756444
AN - SCOPUS:85026889816
T3 - Studies in Health Technology and Informatics
SP - 104
EP - 111
BT - Integrating and Connecting Care - Selected Papers from the 25th Australian National Health Informatics Conference, HIC 2017
A2 - Schaper, Louise K.
A2 - Whetton, Sue
A2 - Ryan, Angela
PB - IOS Press
Y2 - 6 August 2017 through 9 August 2017
ER -