TY - CONF
T1 - Intention of use of the patient-centric research engagement portal (PREP)
AU - Pang, Patrick Cheong Iao
AU - Chang, Shanton
AU - Clavisi, Ornella
N1 - Funding Information:
This research is supported by the Melbourne School of Engineering early-career researcher grant at the University of Melbourne. We feel grateful to Yaoxi Shi, Hana Sabanovic and Hugh Bidstrup for their assistance. Wealso appreciatethepatientswho contributed theirtime and insightsto thisstudy.
Publisher Copyright:
© Proceedings of the 24th Pacific Asia Conference on Information Systems: Information Systems (IS) for the Future, PACIS 2020. All rights reserved.
PY - 2020
Y1 - 2020
N2 - Patients are keen to participate in health research in this era of participatory health, but they cannot easily obtain information about research; meanwhile, researchers are facing challenges when recruiting participants for their research because their messages cannot reach patients efficiently. To mitigate both issues, we explore the use of a patient-centric research engagement portal (PREP), which is a unified system to disseminate information about research studies and to collect registrations for the participation of research projects. In this paper, we particularly investigate the intention of use of PREPs by conducting focus groups and semi-structured interviews. As a part of our analysis, we propose a model to describe the patient-related and the owner-related factors that affect the intention of use. Finally, we conclude with several design implications for information systems to recruit and engage with research participants.
AB - Patients are keen to participate in health research in this era of participatory health, but they cannot easily obtain information about research; meanwhile, researchers are facing challenges when recruiting participants for their research because their messages cannot reach patients efficiently. To mitigate both issues, we explore the use of a patient-centric research engagement portal (PREP), which is a unified system to disseminate information about research studies and to collect registrations for the participation of research projects. In this paper, we particularly investigate the intention of use of PREPs by conducting focus groups and semi-structured interviews. As a part of our analysis, we propose a model to describe the patient-related and the owner-related factors that affect the intention of use. Finally, we conclude with several design implications for information systems to recruit and engage with research participants.
KW - Health Research
KW - Participant Recruitment
KW - Patient Register
KW - Research Portal
UR - http://www.scopus.com/inward/record.url?scp=85090650005&partnerID=8YFLogxK
M3 - Paper
AN - SCOPUS:85090650005
T2 - 24th Pacific Asia Conference on Information Systems: Information Systems (IS) for the Future, PACIS 2020
Y2 - 20 June 2020 through 24 June 2020
ER -